Home Sweet Home

We made it home yesterday afternoon! Caroline did beautifully!! We made it through our first night without any beeps!!! She was all over the place in her chair yesterday and even got out with Sophie and Meg for a bit to see Mr. Chip's Halloween House. We are so glad to be home. She'll return to school on Monday.

Vent's Here!!!!!

Caroline's vent was delivered this afternoon. Must have been while she was visiting with Alexander, Lily, and Hope. They stopped by to see her and brought her lots of crafts. Thanks, guys! Really, could her day have been any better? She spent some more time downstairs with Kran and now we're back in the rm getting things squared away for tomorrow. Should d/c by tomm. afternoon. Her PICU nurse, Jenny, stopped by for a photo. Jenny was Caroline's nurse when she was born and has been with us every step of the way. We love you, Jenny!

Still No Vent

Nothing new to report today. Still waiting on our vent. Caroline's down to breathing tx's every 6 hours. We have noticed some blood in her trach but they think it's most likely from the suctioning--which has let up tremendously. She's happy and feels good. That makes taking care of her easy. Seeing her friends and getting out of the room really helped lift her spirits. She's "feeling the love" all right. I've hung every card she's gotten. Her room is rockin', for sure! She got a postcard from Jamal (her RT last wk) today who is vacationing in Boston. How cool is that? She's definitely made some new friends! They have taken very good care of her in the TICU. 17 days is the longest she's ever been hospitalized. We're all tired( haggard is more like it) and anxious to get home. Caroline was funny today. She pulled a blanket up over her head and while I pulled her in the wagon she made the sign of the cross and blessed everyone. Lots of "Peace be with you ('s)!!" Needless to say, Kran was very proud! She got to paint a pumpkin and decorate a cookie in the Zone. We're trying to get her back on a normal sleep schedule...Ahhh, sleep.....

So Happy Together

Had an awesome visit with the Green girls last night! So excited to finally see them. Dr. Julius stopped by for a photo. He's taking very good care of her! Still waiting on our vent. Still feeling good. Stopped two more meds. Hard to believe we've been here for 16 days. Thank you, Ms. Harrigan, for stopping by today. What a great surprise!! Thank you for all the goodies and for looking over her plural possessives!!

Surprise Visit

Caroline just had a surprise visit from Mrs. Sproat, Brooke, and Harry! Thank you for visiting and for all the goodies! She loves the poster from her classmates, too. We'll be sure to hang it in her room. Thanks a bunch! Good luck in Athens tomorrow, Harry! Hope it's a good run~

Friday am

Caroline and Catherine go head to head! How cute is that costume?! Never know who will drop in up here~ A laugh was a good way to start our day!

Caroline's still doing quite well. She's really moving her chest congestion and has had a few plugs. She's benefited from the Exsufflator for sure. The precaution lift has been nice and she has enjoyed getting out of her room. No new news really. Just waiting on the vent.