Sweet Caroline

Monday, August 4, 2008

Tuesday Discharge Plans

Caroline required some O2 last pm so they felt it safe for her to stay another night. She did well today. She had a rash today which Benadryl helped. Not sure what caused it. The Pulm. will discharge her tomorrow with or without O2. Home health will meet us at the house to set up just incase. We never were able to see the Ortho and don't have a reschedule date yet but they have some baseline labs now for future reference as far as her O2 and CO2 levels are concerned. Her CO2 levels were "dangerously high." It should be below 20 and was 39. She was able to get a new G-button while inpatient which has helped a lot with her feeds and leaking. Plus, it saved us a trip! I'll write once we're home or sooner if things should change. Good night! SP

Saturday, August 2, 2008

Hospitalization Update

Caroline's making progress~ slowly but surely. Her O2 is down to .50 L and she's still fever free. She's sleeping a lot, but I think she's just catching up. Her CXR showed a LLL pneumonia/atelectasis after all. The antibiotics are working. Caroline's chest wall deformity (scoliosis/kyphosis) does not allow her chest to move well enough ( if at all) to "cough it up." We're doing lots of CPT and breathing tx's. Baby steps...........another 2-3 days inpatient per the Pulm. tonight. SP

Wednesday, July 30, 2008

Caroline's sick

Caroline's trach culture was positive on Monday and has been on abx since. She's febrile and coughing again today. The Ped/Pulm rx'd steroids. Her o2 sats were low today( 80's). I'm keeping her pre-op for Friday and praying for nothing less than a miracle. Caroline desperately needs to have this VEPTR revision on Aug 4.
SP

Thursday, July 24, 2008

MD appt's

Caroline's had a few MD appt.'s in the last couple of weeks. The GI has changed her feeding schedule in hopes of adding a few pounds. This will help with the skin breakdown over her rib device. She had two bottom teeth pulled and her new dentist , Dr Martin Krieger, is fabulous!The ENT said her ears look great. PE tubes in AND working...bonus! Her 8 year check up was yesterday. I still can't believe she's 8. All's well in that dept. and Trach Clinic is tomorrow- and pre-op next week!